Every child with Aperts is their own text book. This advise was given to me very early on in our Apert journey. Throw What to Expect the First Year out the window! More advise. All great advise. All frustrating advise. There are times I wish I could just know if something was an ‘Apert thing’ or a ‘baby thing’. Like this morning when I was doing Phoenix’s hair. Either she has a very sensitive head and does not want pigtails or she is starting to have pressure on her brain and it hurts when I mess with her head. Considering that my brain jumps to the worst conclusion for everything, I am going to go with the first.