Posted by on Jun 25, 2013 in Update | No Comments

We have t-shirts for sale!! All proceeds to go to help off set her upcoming surgeries!! Just follow this link.          

Lopsided Pigtails

Posted by on Jun 21, 2013 in Update | 3 Comments

Every child with Aperts is their own text book. This advise was given to me very early on in our Apert journey. Throw What to Expect the First Year out the window! More advise. All great advise. All frustrating advise. There are times I wish I could just know if something was an ‘Apert thing’ […]

July 19th

Posted by on Jun 20, 2013 in Update | 3 Comments

We have a surgery date! We have had it for awhile now, but I just haven’t publicly posted it yet. July 19th. July 19th is the last day we will ever see Phoenix’s little rosebud hands. July 19th is the last day we will see her little piggies in a blanket. In a way I […]