Sleep Study (or lets play ‘annoy the baby’)

Posted by on May 26, 2013 in Update | 2 Comments

Phoenix had her first sleep study last week. If you don’t know what happens during a sleep study let me tell you (and just to let you know there isn’t much sleeping). First, they places about 30 wires (from head to toe) on a 7 month old baby. Second, they expect her to fall asleep […]

Rosebud Hands

Posted by on May 19, 2013 in Update | 4 Comments

I have to admit I have very mixed emotions about P’s upcoming surgeries. There is a part of me that is ready for her to have released fingers. Life will be so much easier for her . . . she will be able to grab and hold things with one hand! But, there is part […]

Beantown

Posted by on May 1, 2013 in Update | One Comment

What to say about Boston? Hmmm…well…to start we LOVED the team of doctors that we met there. But, Luke and I haven’t made up our minds completely on what our plan is going to be, because of that I will let you all know once we have made up our mind. The plane ride up […]

Jochebed

Posted by on Apr 24, 2013 in Update | 3 Comments

I am a big time procrastinator. Like right now….I should be packing for Boston, but instead I find my self researching about Jochebed. Who is Jochebed you might wonder? Glad you asked!!! She is Moses’ mommy. Over the past year I have heard two sermons about Jochebed, which is pretty remarkable considering she is a […]

Appointment April

Posted by on Apr 22, 2013 in Update | 5 Comments

Okay time for honesty…I have restarted this blog post a couple times. There are couple reasons why. First, I kept forgetting about it and then I would have to edit what was previously written because things that I said were going to happen happened. Ramble much? Also, my feelings kept changing. It seemed to me […]

Is it really well with my soul?

Posted by on Mar 8, 2013 in Update | 9 Comments

Traveling to all 50 states has been on my bucket list for some time now. I have now crossed Texas off. Later this year I am going to check Massachusetts off. After talking with other families, Luke and I have decided to check Boston Children’s Hospital out. Originally, the plan was to go down to […]

Adapting

Posted by on Feb 27, 2013 in Update | 5 Comments

Phoenix decided to throw her schedule out the window today. It started with a 5am wake up call (she has been sleeping through the night) with a request of a bottle. Thankfully, she went back to sleep and didn’t get back up till 8….a BIG THANK YOU to Daddy for getting up and feeding her!!! […]

Friday’s Concert!

Posted by on Feb 25, 2013 in Update | No Comments
Friday’s Concert!

Wow! We had an AMAZING turn out for the concert Friday night! Over 300 people braved the roads and cold weather to support Phoenix! Thank you so much for your generosity……together you raised over $8000!!   I want to send a big thank you to Evidence Sings. You girls are amazing and I love you so much! Honestly, […]

Benefit Concert!

Posted by on Feb 21, 2013 in Update | 2 Comments
Benefit Concert!

Brrr . . . . it’s cold outside! Hopefully the weather will clear up because we are having a benefit concert for the cutest little bundle of joy ever! We are so blessed that the group Evidence Sings will be performing a benefit concert (tomorrow night – Febuary 22) for Phoenix!!  These lovely ladies have been praying […]

Numb

Posted by on Feb 18, 2013 in Update | One Comment

According to Dictionary.com: Numb [nuhm] 1. Deprived of physical sensation or the ability to move 2. Manifesting or resembling numbness 3. Incapable of action or of feeling emotion; enervated; prostrate 4. Lacking or deficient in emotion or feeling; indifferent   Yep, that about sums up how I feel. Numb. Numb to the world. Numb to […]