Valentines Day
Happy Valentines Day! One year ago today Luke Coleman and I were getting ready to go to the doctor’s office to find out if that little white stick was telling the truth. 🙂 One year ago we saw our little girl for the first time, we saw her little beating heart and we fell in […]
Geneticist Appointment
Yesterday was Phoenix’s appointment with the geneticist and she was diagnosed with Aperts syndrome. Apert syndrome is a genetic disease in which the seams between the skull bones close earlier than normal. This affects the shape of the head and face. It also caused the webbing in her hands and feet. We are now facing […]
Pediatrician
Phoenix’s pediatrician called with the results of her microarray test. She has a duplicated gene, as of right now there is no known specific genetic disorders associated with this particular gene. Luke and I will be tested to see if either of us have this duplication. It is still unknown if this is the cause […]
Update on Phoenix
When sweet baby Phoenix was born it was discovered that she had webbing on her little hands and feet. She has all her toes, but they are all connected. The best way to describe her little hands is for you to imagine that all your finger tips are touching each other (including the thumb) then […]
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